https://www.ncjrs.gov/pdffiles1/nij/183781.pdf. Pediatr Blood Cancer. Nasir A. Risky families: family social environments and the mental and physical health of offspring. Int J Methods Psychiatr Res. https://doi.org/10.1007/s10488-010-0319-7. https://doi.org/10.1371/journal.pmed.1001349, http://www.census.gov/hhes/families/data/children.html, https://www.ncjrs.gov/pdffiles1/nij/183781.pdf, http://www.nimh.nih.gov/health/statistics/prevalence/any-mental-illness-ami-among-us-adults.shtml, http://creativecommons.org/licenses/by/4.0/, http://creativecommons.org/publicdomain/zero/1.0/, https://doi.org/10.1186/s40359-018-0277-5. 2017. https://doi.org/10.1002/pbc.26634. Murphy JM, Bergmann P, Chiang C, Sturner R, Howard B, Abel MR, et al. Childhood cancer affects and is affected by multiple levels of the social ecology, including social and relational determinants of health (e.g., economic stability, housing, childcare, healthcare access, child and family problems). Paperback: The Guilford. The resulting model was a good fit to the data (χ2(238) = 203.44, p = .95). The Preparing to Implement the Psychosocial Standards–Current Staffing and Services (PIPS-CSS) study of 144 US pediatric cancer programs conducted to prepare for broad implementation of the standards [5, 11] found that there are challenges and inconsistent interpretations of psychosocial care [5, 11]. Hedges LV, Rhoads CH. Acad Emerg Med. Kazak AE, Hwang WT, Chen FF, Askins MA, Carlson O, Argueta-Ortiz F, et al. Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. This report will be distributed to the study team who will discuss the issues identified. Funding was provided from the Department of Pediatrics at the University of Nebraska Medical Center. The PAT is discussed below in more detail. Cattell V. Poor people, poor places, and poor health: the mediating role of social networks and social capital. Screening for family psychosocial risk can identify families who may benefit from interventions directed at improving childhood health outcomes. Caring for the dying patient and his or her family requires the efforts of the whole multi-disciplinary team: the nurse, the CNA, social worker, the doctor and the chaplain. BACKGROUND: Childhood cancer affects and is affected by multiple levels of the social ecology, including social and relational determinants of health (e.g., economic stability, housing, childcare, healthcare access, child and family problems). Reslience in Development. Adm Policy Ment Health. Compared to training: H2.1. Implement Sci. A pilot testing of the “family psychosocial index” for the assessment of family ⬚psychosocial risk in primary care; 2015. Article  Examples include the SEEK, a model for prevention of child maltreatment in the primary care setting. McCarthy MC, DeGraves S, Wakefield CE, Bowden MJ, Marks LV, Williams LK. Int J Qual Health Care. National Cancer Policy Forum, Board on Health Care Services, Institute of Medicine, National Academies of Sciences, Engineering and Medicine. Google Scholar. 2020;45(4):423–33. Barrera M, Hancock K, Rokeach A, Atenafu E, Cataudella D, Punnett A, et al. Jobs by Salary Range. Similar significant differences were observed for FHQ2 (“Same home for 2 years”; t(160.36) = 3.86, p < .001), FHQ4 (“Live with both parents”; t(266.07) = 3.31, p = .001), FHQ6 (“History of mental health problems”, t(311) = 3.65, p < .001) and FHQ9 (“Domestic violence”; t(311) = 3.88, p < .001). Whether the PAT was administered as intended will be assessed using monthly EHR data. Smith KC. After an initial screening, elevated levels of psychosocial risk may indicate the need for a more in-depth and specific assessment to be conducted by psychology, psychiatry, or other another clinical mental health provider.. Fleury M-J, Imboua A, Aubé D, Farand L, Lambert Y. Two Empirically Supported Tools 1996;1(1):30–46. The authors declare that they have no competing interests. Identifying families with these psychosocial risk factors can help in targeting services to these families. et al. Risk screening initiates a process of preventive interventions across cancer treatment and facilitates access to evidence-based psychosocial care for children, potentially preventing increased distress and long-term limitations to health-related quality of life [9, 10]. Involvement of healthcare leaders in aims 1 and 3 will provide expert input in larger system level change to support family psychosocial risk screening and psychosocial care in pediatric cancer. Therefore the staff sample ranges from a minimum of 45 ([18 × 2] + 9) to a maximum of 99 ([18 × 5] + 9), likely in the middle given the range of size of sites. Login. 2006;63:1246–56. Thousand Oaks: Sage; 1995. 2010;98:980–94. Finally, all data will be examined in each category to combine categories into themes. Parents of 315 children between 4 and 6 years of age presenting for kindergarten physical examinations or other health care maintenance visits were recruited from two primary health clinics in Nebraska from June 10 to August 10, 2016. Caregiver distress and patient health-related quality of life: psychosocial screening during pediatric cancer treatment. 2009;115(Suppl 18):4339–49. Cancer. 2007;119:435–43. PubMed  Exploring risk factors for the emergence of children’s mental health problems. The aim of this research is to implement universal, systematic family psychosocial risk screening with the PAT in English and Spanish to assure that all families of children newly diagnosed with cancer at the participating cancer centers are screened. Associations of early exposure to intimate partner violence and parental depression with subsequent mental health outcomes. Strategies for scaling tested and effective family focused preventive interventions are being discussed that aim to promote children’s cognitive, affective and behavioral health [18]. Bredart A, Marrel A, Abetz-Webb L, Lasch K, Acquadro C. Interviewing to develop Patient Reported Oucome (PRO) measures for clinical research: elicit patients’ experience. McCarthy MC, Hearps SJ, Muscara F, Anderson VA, Burke K, Hearps SJ, et al. 2008; doi: https://doi.org/10.17226/11993. The coordinators will meet monthly to problem-solve any concerns about data collection. Pediatric Psychosocial Preventative Health Model. Universal, systematic screening assures that assessments are integrated and resources meet the needs of all children with cancer and their families. The economics, technology, and neuroscience of human capability formation. 2007;19(6):349–57. Forming inferences about some intraclass correlation coefficients. We will randomize sites to time of implementation (three cohorts) and strategy (two—I, II). The first standard is “youth with cancer and their family members should routinely receive systematic assessment of their psychosocial healthcare needs” [4]. Advanced statistics: statistical methods for analyzing cluster and cluster-randomized data. Dubowitz H, Feigelman S, Lane W, Kim J. Pediatric primary care to help prevent child maltreatment: the safe environment for every kid (SEEK) model. ClinicalTrials.gov, NCT04446728, registered 23 June 2020, First study to apply dissemination and implementation methods to psychosocial screening in pediatric populations, specifically children with cancer and their families, Application of rigorous implementation methods to pediatric health care setting, Test of implementation of psychosocial screening to reduce health disparities. ERIC strategies utilized are noted in parentheses throughout this article. As a site in the National Cancer Institute Community Oncology Research Program (NCORP), we will include a broad network of community and minority sites. the clinical setting. The RFA Program is a unified, equitable, family-friendly and child-centered resource family assessment and approval process. Embedded in social ecology theory, the PAT total score maps on to the Psychosocial Preventative Health Model (PPPHM, Fig. The group format of this strategy is intended to foster group problem-solving and peer support about issues in implementation. US Bureau of the Census. Psychosocial assessment is a significant part of any nursing assessment with a lot of perfection. Pediatr Blood Cancer. So if you put the two together, psychosocial assessment is basically the evaluation of one’s own mental health and social well-being. We also aimed to examine the properties of the FHQ to determine its validity as a screening test. He was always casually dressed in slacks, or jeans and t-shirt or short sleeves shirt like most youths or teenagers. Author information: (1)Aflac Cancer and Blood Disorders Center, Children's Healthcare of Atlanta, Atlanta, GA, USA. If you are a new clinician or still in school you might be wondering how to write up a thorough biopsychosocial assessment for a client. This reduces the time available to the clinician for assessment of these problems [26]. Terms and Conditions, J Epidemiol Community Health. Childhood cancer affects and is affected by multiple levels of the social ecology, including social and relational determinants of health (e.g., economic stability, housing, childcare, healthcare access, child and family problems). J Pediatr Hematol Oncol. Family functioning prominently shapes the psychosocial adaptation and mental health of the child. Schepers SA, Sint Nicolaas SM, Maurice-Stam H, Haverman L, Verhaak CM, Grootenhuis MA. 2005;15(9):1277–88. A score of 10 indicates the absence of risk factors and the lower the score the greater the number of risk factors present. Am Psychol. Powell BJ, Waltz TJ, Chinman MJ, Damschroder LJ, Smith JL, Matthieu MM, et al. Repetti RL, Taylor SE, Seeman TE. Implementation science : IS , 15 (1), 60. Interparental conflict, negative parenting, and children’s adjustment: bridging links between parents’ depression and children’s psychological distress. Pediatr Blood Cancer. PubMed  Children accompanied by a non-guardian were also excluded. This protocol follows reporting standards using the Standards for Reporting Implementation Studies (StaRI). Strategy I is training (webinar) to educate providers on the PAT and its administration. Maslach Burnout Inventory Manual 4th Edition. Neither the three factor (Δχ2(6) = 10.26, p = .11) or four factor (Δχ2(5) = 8.57, p = .13) solutions resulted in a significantly improved fit. The Intensity of Treatment Rating Scale (ITR-3) [54] will be completed at the 90-day post-screening data collection time point based on diagnosis, stage, and treatment. Rouquette A, Falissard B. Screening with the PAT can be completed at diagnosis [17], can be used by multidisciplinary staff, and facilitates the delivery of psychosocial care [18]. If we think all our choices or decisions in life are too risky, then it is wise to reassess every single one before starting to make new ones. Questions have dichotomous answers of yes or no. In the TIER condition, attendance on calls and minutes of the monthly consultation calls will be prepared. Three approaches to qualitative content analysis. Jellinek MS, Murphy JM, Little M, Pagano ME, Comer DM, Kelleher KJ. However, little is known about risk over the course of treatment and its association with medical and psychosocial healthcare utilization. Pai 1 2 Avi Madan Swain 3 4 Fang Fang Chen 5 6 Wei-Ting Hwang 7 Gabriela Vega 5 Olivia Carlson 5 Francisco Argueta Ortiz 5 Kimberly Canter 5 6 Naomi Joffe 1 2 E. Anders Kolb 6 10 Stella M. Davies 2 8 Joseph H. … Fam. 2012;129:e232–46. If substitutions are necessary, sites that are newly invited will be added to the denominator and adoption calculated by total acceptances/total invited. Abstract: Children develop in the context of the family. The early identification of families of children at risk for behavioral problems may offer an important opportunity to mitigate negative behavioral outcomes. Match of psychosocial risk and psychosocial care in families of a child with cancer. 2018. https://doi.org/10.1002/pbc.26869. To address the first standard of family psychosocial assessment, the Psychosocial Assessment Tool (PAT) is a validated screener ready for broad implementation. Effective Assessment of Family Information at Intake Gathering information about a young person's family background and the state of their current relationships with immediate and extended family members will help you to understand their story and will assist you in helping them to build a positive support network. Clin Pract Pediatr Psychol. Family psychosocial risk screening in infants and older children in the acute pediatric hospital setting using the Psychosocial Assessment Tool. 2, David Taylor. The relevant literature indicates that these factors capture the factors most closely associated with adverse childhood experiences, and also provide a global evaluation of the family’s psychosocial milieu [5, 10,11,12, 14, 20, 28,29,30,31]. JAMA Pediatr 2014;168:16–24. We developed the Family Health Questionnaire (FHQ) for the purpose of evaluating families’ psychosocial risk profiles in the primary care setting. Subsequent to the final analysis of data from the aim 2 trial, we will refine the preliminary framework for the PAT Implementation Toolkit website which we expect will include the training webinar, technology support, PAT Implementation Plan, complete information to implement the PAT across centers of different sizes, materials specific to using the Spanish version of the PAT, suggestions for overcoming identified barriers and bolstering facilitators, evidence for how screening can impact health disparities, frequently asked questions, and guide for sites in identifying resources to guide intervention based on PAT scores. Essex MJ, Kraemer HC, Armstrong JM, Boyce WT, Goldsmith HH, Klein MH, et al. Eighteen sites will be randomized to one of three cohorts. J Consult Clin Psychol. As one of the few applications of implementation science in pediatric cancer, the results of this trial will provide valuable information about what strategies are effective in supporting comprehensive care. 2). Additional support for this research was provided by the Center for Pediatric Traumatic Stress (SM080048), the Nemours Center for Healthcare Delivery Science, the Nemours Center for Cancer and Blood Disorders, and the Department of Pediatrics at the Children’s Hospital of Philadelphia. Psycho-oncology. The Psychosocial Assessment Tool (PAT) [7, 8] is an evidence-based parent/caregiver report screener of family psychosocial risk in English and Spanish. Not all medical or therapeutic practitioners use this form. Aim 1 corresponds to the first component of the ISF, Prevention Synthesis and Translation System. Psychosocial assessment as a standard of care in pediatric cancer. It includes data that may present indirect risk. 3). Correspondence to McGilloway S, Ni Mhaille G, Bywater T, Furlong M, Leckey Y, Kelly P, et al. CAS  Wears RL. Salary.com. Implement Sci. Structural equation modeling. J Pediatr Psychol. The test was self-administered by the caregiver, required no training, and took less than 2 min to complete on average. Psycho-oncology. Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. For the remaining interviews, each transcript will be coded independently by a two-person team that will discuss each interview and reconcile any discrepancies until they reach 75% agreement. Family Psychology Place provides high-quality assessments and effective counselling for all ages in NW and SW locations. The Psychosocial Assessment Tool (PAT)©: pilot data on a brief screening instrument for identifying high risk families in pediatric oncology. Biol Blood Marrow Transplant. = 1.56) or non-insured families (M = 8.38, S.D. http://www.nimh.nih.gov/health/statistics/prevalence/any-mental-illness-ami-among-us-adults.shtml. The three characters that are analyzed in this paper include Olive, who at 7 years old falls within the 6 to 12 years age bracket of industry versus inferiority crisis stage. The caseworker will first look over any information provided about your … Diversity of population. 2012;37(6):614–21. Mahwah, NJ: Lawrence Erlbaum Associates Publishers; 2006. An interdisciplinary group of investigators utilized EBSCO, PubMed, PsycINFO, Ovid, and Google Scholar search databases, focusing on five areas: youth/ family psychosocial adjustment, family resources, family/social support, previous history/premorbid functioning, and family struc-ture/function. Thousand Oaks, CA: Sage; 2005. p. 343–4. We will coordinate with Children’s Oncology Group (COG) to assure sites have access to the Toolkit. 2015;10:21. https://doi.org/10.1186/s13012-015-0209-1. Psychosocial assessment of the family in the clinical setting Arwa Nasir1*, Andrea Zimmer2, David Taylor3 and Jonathan Santo4 Abstract: Children develop in the context of the family. Identifying psychosocial risk indicative of subsequent resource utilization in families of newly diagnosed pediatric oncology patients. = 1.35). Living Arrangements of Children Under. The focus of family assessments are to establish the extent of any emotional harm suffered by a child and to explore the functioning of a family whether together or apart. Fragile families and child wellbeing. Implementation of family psychosocial risk assessment in pediatric cancer with the Psychosocial Assessment Tool (PAT): study protocol for a cluster-randomized comparative effectiveness trial. Screening for family psychosocial risk in pediatric hematopoietic stem cell transplantation with the Psychosocial Assessment Tool. Acad Pediatr. 2003;2(3):177–203. For H2.3b sustainability (PIQ perceptions of implementation benefits and challenges), ANOVA will be conducted to compare the effectiveness of the two strategies on benefits and challenges. JAMA. Kazak AE, Cant MC, Jensen MM, McSherry M, Rourke MT, Hwang WT, et al. Pediatric Psychosocial Preventative Health Model (PPPHM): Research, practice and collaboration in pediatric family … Health Psychol. 2018;73(1):26–46. NIH Office of Behavioral and Social Sciences Research: Plano Clark VL; 2011. https://obssr.od.nih.gov/wp-content/uploads/2016/02/Best_Practices_for_Mixed_Methods_Research.pdf. The site PI and center staff conducting screening will participate in a monthly 1-h consultation call (provide ongoing consultation, create a learning collaborative) with other TIER sites in that cohort. The second character is Deanne, who is about 15 years and falls under the 12 to 20 years adolescence stage consisting of identity versus role confusion crisis stage. Purposeful sampling. Quality improvement, implementation and dissemination strategies to improve mental health care for children and adolescents: a systematic review. Kazak AE, Barakat LP, Hwang WT, Ditaranto S, Biros D, Beele D, et al. 2015;54(5):574–80. Descriptive statistics will be reviewed. Pai ALH, Madan-Swain AM, Chen FF, Hwang WT, Vega G, Carlson O, et al. H2.3. To test the effect of time, we will conduct latent growth curve analysis [71,72,73]. Gilleland J, Reed-Knight B, Brand S, Griffin A, Wasilewski-Masker K, Meacham L, et al. The Family Health Questionnaire is shown in Table 1. To support pediatric cancer centers in their goal of meeting the first Standard of Psychosocial Care, this study will compare two implementation strategies for the Psychosocial Assessment Tool (PAT), a validated parent report screener of family psychosocial risk in English and Spanish, in a cluster randomized trial across 18 pediatric cancer programs in the United States. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. Part of Interactive systems framework and stages of the implementation study. Sample size requirements for the internal validation of psychiatric scales. Children develop in the context of the family. The PAT generates a total score and 7 subscales (family structure, social support, child problems, sibling problems, family problems, stress reactions, family beliefs). Syst. Future work should also explore the use of this instrument in the scaling of family focused interventions aimed at preventing behavioral problems. 2015;62(Suppl 5):S426–59. ICCs among the clusters will be calculated and used to adjust for the cluster effect [67, 68]. 8. However, we will distribute the PAT Implementation Toolkit to these sites and seek to evaluate the impact of broader dissemination of the Toolkit across sites of different sizes and different geographic locations. Interviews will be transcribed by a professional transcription service and uploaded to a qualitative data management program (Atlas.ti ©) for formal coding. Table 3 shows the frequencies of responses to the questions. We adapted the PAT for hematopoietic stem cell transplantation (HCST) [31] including development of a clinical pathway to facilitate its integration in clinical care [32, 33], and in sickle cell disease, adding items to capture relevant aspects of the social context for families (e.g., school absences, changes in housing) [34]. Not sharing the data ( χ2 ( 238 ) = 203.44,

family psychosocial assessment

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